CDC Draws Ire for Secret Meetings on Lyme Disease PolicyCDC Draws Ire for Secret Meetings on Lyme Disease Policy
“The Centers for Disease and Control Prevention (CDC) group in charge of policy for Lyme disease violates federal law by participating in clandestine advisory meetings with the Infectious Diseases Society of America (IDSA),” says The Mayday Project—a volunteer organization comprised of those touched by Lyme disease—who collaborated on a petition calling on CDC to End Preferential Treatment of the IDSA Guidelines for Lyme Disease.
The petitioners claim that “because of restrictions imposed by the critically flawed IDSA guidelines, which are endorsed and promoted by CDC, thousands of chronically ill patients are harmed by misdiagnosis and denial of medically necessary treatment.” According to a Johns Hopkins study, these poor outcomes cost the U.S. healthcare system $1.3 billion annually. Patient out-of-pocket expenses and burdens to Medicare and Medicaid cost our economy billions more.
The petition documents what advocates claim are serious, long running violations of federal law by officials responsible for CDC’s Lyme disease program.
According to the petition, the Ad Hoc International Lyme Disease Group (Ad Hoc Group) was formed in 2005 by CDC and NIH employees and authors of the IDSA guidelines. Emails released in response to a Freedom of Information Act (FOIA) request by science writer Kris Newby for the award winning documentary Under Our Skin, show that CDC has allowed the Ad Hoc Group to illegally determine federal policy on Lyme disease for the past decade.
According to Congressional testimony by Lorraine Johnson, CEO of LymeDisease.org, who reviewed the emails, the Ad Hoc Group “composed of members of the Infectious Diseases Society of America (IDSA), a medical specialty society, along with members of the Centers for Disease Control & Prevention (CDC) and the National Institutes of Health (NIH), has been acting in violation of fundamental principles of ethics. This group has been covertly setting government Lyme policy, intentionally excluding other stakeholders, running afoul of government open meeting standards, and deliberately subordinating the public interests to those of a private medical society.” (...)
Что-то мне подсказывает, что Лайм организации собрались засудить СДС и Ко за бездействие в вопросе болезни Лайма...
Очень любопытно во что это выльется . Если они выиграют то нас ждут очень скорые серьезные изменения в вопросе нашей болячки...